Grant Funding and Partnerships

HRSA: Title V MCH Block Grant Program

Title V is a federal grants program, administered by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration. For over 75 years, the Federal Title V Maternal and Child Health program has provided a foundation for ensuring the health of the Nation’s mothers, women, children and youth, including children and youth with special health care needs, and their families. OGCSHCN is Maryland’s Title V program for CYSHCN. Each year, Maryland reports to MCHB on how they use Title V Funds. Here is Maryland’s latest report:
Maryland Title V 2015 Annual Report and 2017 Application
Every five years, states conduct a comprehensive Needs Assessment for Title V programs. Here is Maryland’s 2015 Title V Needs Assessment. It is a lengthy document with a lot of useful information. For data specific to Maryland CYSHCN, go to Appendix C, starting on page 284 of the PDF document: 


Office for Genetics and People with Special Health Care Needs Grant Funding

Title V-Maternal and Child Health Block Grant Funding is provided to support infrastructure building for systems of care for Children with Special Health Care Needs (CSHCN) The Office of Genetics and People with Special Health Care Needs (OGPSHCN) seeks to provide funding opportunities that will support the current priorities of the office and will assist in achieving the objectives and outcomes established in the office Action Plan. The OGPSHCN seeks to support new and innovative community led initiatives aimed at improving the health and wellbeing of CSHCN. Grants are awarded to academic centers, medical day care centers, community organizations, family support organization, condition specific organizations, genetic centers and local health departments to fill gaps in services and support infrastructure building in the system of care for CYSHCN. Grants are awarded to focus on funding priorities and the availability of Title V funds. The Title V priority areas for CYSHCN are Medical Home and Health Care Transition.
More information on the Federal Title V Grants Program and National Performance Measures can be found at:


HRSA: Reducing Loss to Follow-up in Maryland After Failure to Pass Newborn Hearing Screening

Funding provided by HRSA has been used to develop the statewide newborn and infant hearing screening, evaluation and intervention program in Maryland.  Efforts through this grant are heavily focused on reducing loss to follow up/loss to documentation of babies who missed or did not pass the newborn hearing screening.  HRSA funding has also allowed face to face educational outreach to physicians in areas of the state where loss to follow up/documentation rates are highest and for the establishment of the Parent Connections parent to parent mentoring program which connects families of babies who have newly identified hearing concerns to families with similar experiences.


CDC: Development, Maintenance and Enhancement of Early Hearing Detection and Intervention Information System (EHDI-IS) Surveillance Programs

Funding provided by the CDC has been used to establish, maintain and enhance the program’s data management system.  The data management system is used to ensure that babies receive timely hearing screening and evaluation follow up and that referrals for early intervention services, if appropriate, are made at the earliest age possible, preferably by 6 months of age.  The data system has been enhanced to include the management of Critical Congenital Heart Disease (CCHD) screening data and Birth Defects Information Reporting System (BDRIS) data.

3 Year Grants Awarded to PPMD and OGPSHCN 

The Parents' Place of Maryland, in partnership with the Office for Genetics and People with Special Health Care Needs, was awarded a three-year 'State Implementation Grant for Improving Services for Maryland Children and Youth with Autism Spectrum Disorders and Other Developmental Disabilities' from the federal Maternal and Child Health Bureau.  This award is based on a strategic plan developed in partnership with many families, providers, physicians, local and state agency personnel, and many other stakeholders across the state of Maryland. 

We are delighted to announce that The Parents' Place of Maryland, in partnership with the Office for Genetics and People with Special Health Care Needs, was awarded a three-year 'Access Improvement Grant for Maryland Children and Youth with Epilepsy' from the federal Maternal and Child Health Bureau.  For more on these grants, please visit

 Office For Genetics And People With Special Health Care Needs

201 West Preston Street - Baltimore, MD 21201
Tel (410) 767-6730   Fax (410) 333-5047