Our Mission, Vision and Core Outcomes

To ensure a comprehensive, coordinated, culturally effective, and consumer-friendly system of care that meets the needs of Maryland's Children and Youth with Special Health Care Needs (CYSHCN) and their families.

To become a nationally recognized leader in developing the unique potential of each Maryland child and young person served through its comprehensive, fully integrated and consumer-friendly system of care.
Core Outcomes:
The federal Maternal and Child Health Bureau (MCHB), together with its partners, has identified six core outcomes as critical indicators of success in implementing community-based systems of services mandated for all children with special health care needs. Office for Genetics and People with Special Health Care Needs (OGPSHCN) prepared briefs about each of the MCHB Core Outcomes for Maryland CYSHCN using the latest National Survey of Children with Special Health Care Needs (2009-10) data. These briefs provide a quick overview and pertinent data for each core outcome:
  1. Families of children and youth with special health care needs partner in decision making at all levels and are satisfied with the services they receive.
    Family-Professional Partnerships - Maryland Data
  2. Children and youth with special health care needs receive coordinated, ongoing, comprehensive care within a medical home.  
    Medical Home - Maryland Data
  3. Families of CSHCN have adequate private and/or public insurance to pay for the services they need.
    Adequate Insurance - Maryland Data
  4. Children are screened early and continuously for special health care needs.
    Early and Continuous Screening - Maryland Data
  5. Community-based services for children and youth with special health care needs are organized so families can use them easily.
    Easy to Use Community Based Services- Maryland Data
  6. Youth with special health care needs receive the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence.
    Youth Transition to Adulthood - Maryland Data