Maryland’s Office for Genetics and Children with Special Health Care Needs (OGPSHCN) conducts data gathering and analysis activities in support of our activities to improve health care and support systems for Maryland kids and youth with special health care needs and their families. On this page, you will find data briefs and reports produced by OGPSHCN as well as links to helpful sites.

 

The federal Maternal and Child Health Bureau (MCHB), together with its partners, has identified six core outcomes as critical indicators of success in implementing community-based systems of services mandated for all children with special health care needs. Learn more about the Core Outcomes and download data reports.

 

 

2010 Maryland Parent Survey:

As part of the Maryland 2010 Title V Needs Assessment, a statewide survey of parents of children and youth with special health care needs was conducted. The survey was conducted by email, in-person, and by phone with 939 families. Of those 939 families, 781 had at least one child with a special health care need. Below are data sheets showing unmet needs for CYSHCN and their families throughout the state, as well as unmet needs in each region of Maryland.

In addition, here are some helpful links to other sources of data on children and youth with special health care needs: