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    Sickle Cell Disease Resources and Links


    Services and Benefits
    Disability Benefits/Social Services Resources

    Health Insurance

    Community and Resource Organizations
    Sickle Cell Disease Association of America

    National Coordinating Center and Evaluation Center for Sickle Cell Disease Newborn Screening Program

    Sickle Cell Association of the National Capital Area

    Sickle Cell Information Center

    American Sickle Cell Anemia Association

    Maryland Sickle Cell Disease Association

    National Institutes of Health

    Centers for Disease Control and Prevention

    American Society of Hematology

    March of Dimes

    Foundation for Women and Girls with Blood Disorders  

    National Collegiate Athletic Association 

    Johns Hopkins I Homes
    Twitter:  Ihomesnetwork

    Child/Teen Oriented Resources
    Sickle Cell Kids

    Student Services
    Student Support Services – College/University
    * The following is a partial list of local colleges’ and universities.  Please check with your individual schools for support services available to students with disabilities and special circumstances.

    Community College of Baltimore County

    Baltimore City Community College
    Medical Resources and Hematology Centers
    Clinical Trials (Sickle Cell research)

    Sinai Hospital
    (410) 601-5864

    University of MD
    (410) 328-2808

    Georgetown University
    (202) 444-2224
    Children’s National Medical Center
    (202) 476-2800
    Hematology (202) 476-7060
    Howard University
    (202) 865-4583
    Johns Hopkins Hospital
    (410) 955-6132
    Nemours AI DuPont Children’s Hospital    
    (302) 651-5500

    Kaiser Permanente-MAS
    Capitol Hill Medical Center 
    700 2nd Street NE 
    Washington, DC 20002 
    Pediatric Hematology-Marianna Horn, M.D. 
    Pediatric Hematology-Eva Perdahl-Wallace, Md., PhD 
    Adult Hematology- Bogdan Dumtiriu, M.D.