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    Sickle Cell Disease Resources and Links

     

    Services and Benefits
     
    Disability Benefits/Social Services Resources

    Health Insurance
     

    Community and Resource Organizations
     
    Sickle Cell Disease Association of America
    www.sicklecelldisease.org

    National Coordinating Center and Evaluation Center for Sickle Cell Disease Newborn Screening Program
    www.sicklecelldisease.net

    Sickle Cell Association of the National Capital Area
    www.scancainc.org

    Sickle Cell Information Center
    www.scinfo.org

    American Sickle Cell Anemia Association
    www.ascaa.org

    Maryland Sickle Cell Disease Association
    www.marylandsicklecelldisease.org

    National Institutes of Health
    www.NIH.gov

    Centers for Disease Control and Prevention
    www.CDC.gov

    American Society of Hematology
    www.hematology.org

    March of Dimes
    www.marchofdimes.com

    Foundation for Women and Girls with Blood Disorders  
    www.fwgbd.org

    National Collegiate Athletic Association 
    www.ncaa.org

    Johns Hopkins I Homes
    Facebook/johns-hopkins-maryland-ihomes-network
    Twitter:  Ihomesnetwork
     

    Child/Teen Oriented Resources
     
    Sickle Cell Kids
    www.sicklecellkids.org
     

    Student Services
     
     
    Student Support Services – College/University
    * The following is a partial list of local colleges’ and universities.  Please check with your individual schools for support services available to students with disabilities and special circumstances.

    Community College of Baltimore County
    http://ccbcmd.edu/supportservices/index.html

    Baltimore City Community College
    http://www.bccc.edu/studentservices
     
     
    Medical Resources and Hematology Centers
     
    Clinical Trials (Sickle Cell research)
    www.clinicaltraials.gov

    Sinai Hospital
    (410) 601-5864
    www.lifebridgehealth.org/sinai

    University of MD
    (410) 328-2808
    www.umm.edu

    Georgetown University
    (202) 444-2224
    www.georgetownuniversityhospital.org
     
    Children’s National Medical Center
    (202) 476-2800
    Hematology (202) 476-7060
    www.childrensnational.org
     
    Howard University
    (202) 865-4583
    www.Huhealthcare.com
     
    Johns Hopkins Hospital
    (410) 955-6132
    www.hopkinsmedicine.org
     
    Nemours AI DuPont Children’s Hospital    
    (302) 651-5500
    www.nemours.org

    Kaiser Permanente-MAS
     
    Capitol Hill Medical Center 
    700 2nd Street NE 
    Washington, DC 20002 
    Pediatric Hematology-Marianna Horn, M.D. 
    Pediatric Hematology-Eva Perdahl-Wallace, Md., PhD 
    Adult Hematology- Bogdan Dumtiriu, M.D. 
    202-346-3690