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    System Development Grants (FY2014)
    Award To Project Funded Award Amount
    The Arc of Montgomery County
    Funds provide continued support to  Karasik and Family, Infant and Child Care Center, a fully-inclusive child care center, located in Montgomery County,  that serves children ages two to ten years of age, including medically fragile children.
    Children's National Medical Center -  Genetics
    Provide comprehensive clinical services for patients with genetic and metabolic conditions in the State of Maryland. 
    Children's National Medical Center- Systems
    Funds support CNMC's ability to provide and sustain integrated access to services and care coordination for Maryland children and youth with special health care needs through the Complex Care Program and Parent Navigator Program. 
    Johns Hopkins Hospital - Genetics
    Support the McKusick-Nathans institute of Genetic Medicine for the provision of genetic services to the people of Maryland, including inpatient and outpatient consultations, outreach clinics, newborn screening follow-up/diagnostic evaluations and long term treatment and management of patients with metabolic and genetic disorders. 
    Johns Hopkins University Hemophila and Hematology
    Provide comprehensive coordinated pediatric hematology care for patients with Sickle Cell Disease. Also provide transition services for youth to adult sickle cell services.  Provide comprehensive, preventative and specialty care for people with hemophilia and other bleeding disorders at Johns Hopkins University.
    Maggie's Light Foundation
    Funds will support a parent-led organization to develop and maintain its 'Community Works' Program, a pre-professional 'family perspective' training program.
    Provide continued support for the provision of specialized child care services to children, birth to five years of age, attending World of Care Medical Child Care Center in Baltimore. Support PACT's training of early childhood care providers and families attending World of Care Center.
    Parents' Place of Maryland
    Provide a statewide, central source of information, resources, support and referrals about the health care system and community-based services for families of children and youth with special health care needs and disabilities in Maryland.
    The Coordinating Center
    Funds support the Take a Break Program, a family-directed respite care program for CYSHCN in Anne Arundel County.
    University of Maryland - Genetics
    Support the UMD School of Medicine Genetic Services Program for the provision of genetic services to the people of Maryland, including inpatient and outpatient consultations, outreach clinics, newborn screening follow-up/ diagnostic evaluations and long term treatment and management of patients with metabolic and genetic disorders.  Also, provide laboratory services for MD residents who are unable to access essential services for the evaluation for genetic conditions. 
    University of Maryland - Systems Development
    Support the ongoing services and continued development of the ASK Program at the University of Maryland which provides information, referral and other care coordination services for Children with Special Health Care Needs.