Health Care Transition Resources in Maryland

iTransition workshops: The iTransition Health Workshops are for youth and young adults with special health care needs or disabilities, their families, caregivers, and or providers to receive resources about the transition from child to adult health care. The workshops include health care management skills, planning tools, and activities to support successful transition. These workshops offer information that empower participants to use resources to make the health care transition process easier and less overwhelming.

Transition Clinics: The Office for Genetics and Children with Special Health Care Needs (OGCSHCN) supports the operation of two pediatric-to-adult transition clinics at the Johns Hopkins Hospital. These clinics assist with planning the move from pediatric to adult specialists for young people with sickle cell disease and diabetes. For more information, please contact us at 1-800-638-8864 or visit the Harriet Lane Clinic website.

Transition Lecture Series: OGCSHCN supports a monthly Transition Lecture Series hosted by The Resource Network at the Kennedy Krieger Institute. These lectures are designed for young people with special health care needs, their families and providers, and cover a wide range of topics important for transitioning youth. For more information, please call 1-800-390-3372.

Additional Resources

Maryland Interagency Transition Council - provides information and resources for transition planning, postsecondary education, employment services, and more.
Developmental Disabilities Administration - provides resources for individuals with developmental disabilities, their families, as well as, providers.
Maryland Division of Rehabilitation Services - offers programs and services which help people with disabilities go to work or stay independent in their homes and communities.
Family NETworks - is an online resource for information and support specific to Maryland families with a member who has a developmental disability.

Other Health Care Transition Resources

Healthy and Ready to Work National Center - offers resources for youth with special health care needs and those that provide care for them.
National Center for Medical Home Initiatives - working to ensure that all children and youth have access to a medical home.
Health Care Transition Initiative - provides resources to improve the transition from child- centered to adult-oriented health care.
Adolescent Health Transition Project - is a resource for adolescents with special health care needs, chronic illnesses, physical or developmental disabilities.
KY Commission on CSHCN Transition Resources - offers resources for young people and their families going through the transition process.
Cincinnati Children's Hospital Medical Center, Center for Infants and Children with Special Needs - provides education and resources for patients and families that are preparing for transition.
Waisman Resource Center - provides resources and publications for families and providers, who take care of special needs children.