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Maryland Department of Health
Genetics
Genetics
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Sickle Cell Disease
What is Sickle Cell Disease?
What is Sickle Cell Trait?
How can SCT impact a person’s health?
What do I need to know about SCT and sports?
How is Sickle Cell Trait (SCT) Inherited?
What does the Maryland Department of Health’s Sickle Cell Disease Follow-Up Program do?
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Office for Genetics and People with Special Health Care Needs
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Birth Defects Reporting Information System
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Sickle Cell Disease Follow-up Program
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Birth Defects Reporting and Information System (BDRIS)
Program Components
Surveillance
Implement and maintain a population based surveillance database to systematically report, collect and analyze reported birth defect data
Identify potential environmental causes of birth defects
Geographically identify types and trends of birth defects in the State of Maryland
Ensure timely reporting
Prevention
Distribute Folic Acid educational material to health care providers, community health care centers providing Pediatrics and OB services, and for use by the general public.
Actively participate in National Folic Acid Awareness Week and Birth Defects Prevention Month
Develop and disseminate educational brochures on birth defects to Health Care Providers, Community Health Care Centers providing Pediatrics and OB services, and the general public.
Research
Ensure confidentiality of reported information as governed by HIPPA Law
Participate in research studies with external agencies. (National Birth Defect Prevention Network)
Collaboratively work with the Maryland Environmental Public Health Tracking Department to ensure availability and accuracy of information collected through the BDRIS system regarding birth defects trends, public health studies, and environmental monitoring on its' web site for use by health care providers and the general public
Ensure availability of birth defect information on the DHMH website
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